Friday, April 15, 2011

Beach Bound and NOT Down

Here's a quick update before MaMe hits the road for a much-needed, impromptu beach get-away.

Drew had an appointment with the pediatric orthopedist at UNC-CH this morning to get a second opinion on his early-onset scoliosis diagnosis.

As I shared before, early onset scoliosis is rare, often self-resolving, and potentially fatal in its progressive form. Getting a solid diagnosis and early treatment is crucial since things can either get better or get way worse. This site has some great information about infantile scoliosis.

After talking last week with the doctor from Shriners, who personally called to follow up from a phone conversation we had the week prior, we were assured that we were in good hands with Dr. Henderson at UNC-CH. He knew Dr. Henderson and felt we would get a solid second opinion, and if needed, he would direct us back to Shriners where Drew could receive casting treatment.

So much depended on today's appointment.

Dr. Henderson confirmed Drew does have infantile idiopathic scoliosis, which is essentially a fancy term for baby scoliosis that has no known cause. Nothing congenital.

That was the bad news.

The good news, according to Dr. Henderson, is that 95% of infantile idiopathic scoliosis cases do resolve on their own. Nothing, like his ribs, indicates that Drew's is progressive. He didn't feel the curve was as bad as the standing assisted x-ray, and he also reaffirmed how flexible Drew's curve really is.

At this time, he recommends a follow-up x-ray in 4-6 months to make sure it hasn't progressed.

I know we are not in the clear until we know for sure the curve isn't worsening. But, we are going to trust for now that we are one of the 95%.

To celebrate, we decided to take off for Myrtle Beach. I need to get my toes in the water and my hiney in the sand.

Life is good today.


Diana said...

Yay! Enjoy your MaMe time in Myrtle. Sometimes a break is what we need to recenter, reassess, and relax. Enjoy!

Jill said...

I'm happy that there's some uplifting news. Have a good weekend at the beach! You deserve it. In my prayers as always. :)

Johanna said...

Happy for the good news! I'll keep you guys in my prayers anyway. Hope you had a fun (totally relaxing) beach day - you deserve it.

Jenner said...

That is such great news!! I'm so pleased to read that the odds of self-correction are so high. Although I know that doesn't put your mind at peace, it still must help an awful lot. You certainly deserve a vacation! Enjoy the sunshine for me! My hubby was just at Myrtle Beach. He traveled down to Parris Island for his nephew's graduation and then visited some family in Myrtle Beach afterwards. Have fun!!

Holly Ann said...

SO happy to hear this!! Enjoy your vacation!!

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